Topic: Group for Parents of special needs children
Mikey117 Joined Mon 11/20/06 Posts: 22114 |
God Bless U all!! I vollenter for special olympics every year and a;ways get way more back than anything I put in!!
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wolfchic Joined Wed 09/26/07 Posts: 6053 |
QUOTE: God Bless U all!! I vollenter for special olympics every year and a;ways get way more back than anything I put in!! |
wolfchic Joined Wed 09/26/07 Posts: 6053 |
QUOTE: QUOTE: QUOTE: I talked to my son's former respite provider tonight and she agreed to begin his respite again. We moved out of the area for the last 5 years and I ran into her by chance at the hospital back in December. She gave me her number but I've been waiting til Christopher's seizures were better controlled. She said she'd get back to me in the next few days. It's been almost a year since I had a respite weekend. Nice!Give that little boy a hug & kiss from us! Thanks, will do. And you know there are hugs and prayers for sweet Maddy May! Yes I do.And she is sucking every one of them up! |
Mystique42 Joined Thu 04/12/07 Posts: 4729 |
I have a son with Down syndrome who is six years old and has decided to take up spitting. He seems to just spit for no reason. Yesterday I was putting him on the potty and he just spit right into my hair. He's been in his car seat and done the same thing. He'll be watching tv and spit at it so now I have plexi glass on my tv. Any ideas?
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tanyaann Joined Mon 12/03/07 Posts: 30283 |
QUOTE: I have a son with Down syndrome who is six years old and has decided to take up spitting. He seems to just spit for no reason. Yesterday I was putting him on the potty and he just spit right into my hair. He's been in his car seat and done the same thing. He'll be watching tv and spit at it so now I have plexi glass on my tv. Any ideas? I don't have any suggestions because I am unfamilar with behavior patterns with down syndrome. Is he doing it for a reaction? If so, act as if he did not do anything and be sure to react to positive things that he does. I know this isn't helpful, but it's the only thing I can pull from my psychology background. |
tanyaann Joined Mon 12/03/07 Posts: 30283 |
My son received a diagnosis of ADHD and he has a little ODD in there too!
So, for all the parents out there with a special needs child... I feel for you! There are days I love him to pieces and he is my angel.... and there are other days where I fall to pieces. Just know that there are other parents that feel this way too! |
njmom05 Joined Mon 04/23/07 Posts: 5515 |
I am so excited, I get to share some happy news. Christopher just started a swimming program at his school. They swim every Tuesday in May and the first 2 Wednesdays in June. This was his first time swimming since he was off for 2 doctor appts last Tuesday.
His teacher said he LOVED, LOVED swimming today. She said he walked right down the steps into the pool and swam with her the whole time. I am so excited for him and his teacher was happy to see how much he enjoyed and how relaxed he seemed in the water. |
Soulbreeze Joined Sun 08/09/09 Posts: 211 |
Happy Mother's Day to all the mother's of special needs children.
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Mystique42 Joined Thu 04/12/07 Posts: 4729 |
Looks like this thread hasn't been active in awhile. I've been dealing with the process of trying to put my son in school. He didn't want to cooperate with the school psychologist today. I think this process is going to be really hard since he's been home for the most part. He is quite stubborn and has Down syndrome.
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lulu24 Joined Sun 02/11/07 Posts: 5941 |
some days i avoid this thread...because i don't want to think about it for a while.
we had more tests last week, and i found out raegan also has a hole in her mitral valve and her other valves are weak, not closing all the way. she also sees an ortho in november for scoliosis. |
wolfchic Joined Wed 09/26/07 Posts: 6053 |
QUOTE: some days i avoid this thread...because i don't want to think about it for a while. we had more tests last week, and i found out raegan also has a hole in her mitral valve and her other valves are weak, not closing all the way. she also sees an ortho in november for scoliosis. Oh(lulu) you are so not alone.There is so much support in this thread.Our prayer are sent to you and Raegan.Remember she is a gift.And you are a gift to her. |
Mystique42 Joined Thu 04/12/07 Posts: 4729 |
It's not easy being a single Mom raising a child with Down syndrome. I've been really angry to have to deal with a Dad who gives me no advance notice of when he's coming or even for how long he will keep my son. Tonight I finally told him he is taking my son tomorrow and I am going to the Blue Grass Festival again and it's time he STEPS UP as a father. I'm sick of him treating me like I have no rights. This is his only child through adoption and I am quite p.o.ed to put is nicely. I really believe when you adopt a child you grow up and stop being so darn selfish.
I'm dealing with an IEP meeting and evaluations by myself, and it's been a real rough week since my son isn't exactly being cooperative with the school psychologist. I guess when God brings you to it, he helps you through it and I've got quite the road ahead of me because I did not put my child in preschool and he's been with me a LOT. So it's going to be a huge adjustment. |
klc Joined Sat 08/18/07 Posts: 3637 |
Im a single mom too. I guess its a common thing for the non custodial/residential parent to treat the other like an employee. I spose its how they live with themselves knowing that they are unable to do as well.
They try to minimize your accomplishments, successes, progress etc and may even try to take credit. The people who know the child however know the truth and that will be satisfaction for us. Dont forget to thank them. I am both a parent and serve students with special needs. I forget all the time to thank my kids teachers. ACK! |
njmom05 Joined Mon 04/23/07 Posts: 5515 |
QUOTE: It's not easy being a single Mom raising a child with Down syndrome. I've been really angry to have to deal with a Dad who gives me no advance notice of when he's coming or even for how long he will keep my son. Tonight I finally told him he is taking my son tomorrow and I am going to the Blue Grass Festival again and it's time he STEPS UP as a father. I'm sick of him treating me like I have no rights. This is his only child through adoption and I am quite p.o.ed to put is nicely. I really believe when you adopt a child you grow up and stop being so darn selfish. I'm dealing with an IEP meeting and evaluations by myself, and it's been a real rough week since my son isn't exactly being cooperative with the school psychologist. I guess when God brings you to it, he helps you through it and I've got quite the road ahead of me because I did not put my child in preschool and he's been with me a LOT. So it's going to be a huge adjustment. Oh boy do I know what you are going through. My ex hubby and I parted in 2003 and I have been raising Christopher by myself since then. He started out telling me he'd see him on weekends. He'd call me on Monday and say he'd be there on Saturday morning, then on Saturday mornings at about 3am when he knew my cell would be turned off, he'd call with one of his laundry list of excuses as to why he couldn't see his son. I called his bluff one weekend and left my cell on. When he called I answered and man he didn't know what to say. When he started in wtih his excuses I told him to NEVER call and NEVER say he was going to see his son. The IEP's, the school officials, the therapists, the doctors, the insurance companies are less then compassionate. Most of them have learned that I won't back down if there is something I know he should have and I know we are qualified for. KLC - I know what you mean about saying thank you. There are two people who I never forget to thank. One is my son's teacher, he really seems to like her alot. The other person is his childcare provider, she does after school care 3 days a week and I'd be lost without her help. She is so flexible and will switch days if my work needs me different days in the office. |
njmom05 Joined Mon 04/23/07 Posts: 5515 |
Happy Holidays to all the amazing families out there.
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